FES BIKE demonstration

Here is #emersongrant2014 enjoying a demonstration on the RT3000 #fesbike with Alex from #cyclonemobility

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Children with neurological impairments have much to gain from FES activity based therapy as they are still growing and have higher levels of neuroplasticity.

Children who experience spinal cord injuries (SCI) may develop many complications, including loss of bone mass, osteoporosis, and pathological fractures.

FES is a well-established rehabilitation technique that uses pulses of electrical current to stimulate peripheral nerves evoking muscle contractions and patterned muscle activity. With Restorative Therapies systems, FES creates patterned movement in the arms, legs and trunk. FES enables muscles to work and perform activities even though the muscles may be weak or paralyzed through neurological disease or injury.

Why is active therapy important?

During passive therapy, muscles don’t actually do any of the work. Arms and legs are moved mechanically, by a non-FES cycle for example. Active therapy, on the other hand, allows muscles to do the work they are meant to do. This is achieved either by an individual moving their muscles on their own or when muscles are activated by FES. Either way, active therapy means muscles are working and performing the activity. FES evoked activity allows individuals to regain function, maintain their health and combat the secondary health complications of immobility.

We are hoping that The 300 challenge will help us raise the much needed funds to purchase an FES bike for Emerson to use in the home approx. 4 – 5 times a week. We need to increase and improve his low bone density and stop his osteopenia getting worse.

The cost of this specialist equipment is £17,000

The cost to attend a specialist centre 4-5 times a week would be approx. £3375 per month that is a staggering £40,500 per a year, plus travel costs.

Therefore, it is more cost effective to purchase a FES Bike to use in the home.

https://www.justgiving.com/…/emersongrant2014-the300challen…

Join our 300 Challenge, We need 100 People, To raise £100 each In 100 days

https://www.facebook.com/events/1992997834280954/

#the300challenge #emersongrant2014 #arachnoidcyst #spinalcordinjury#FESbike #cystonthespine #physicaltherapy #physiotherapy#Activetherapy

Finding Hope in art and sports

16 months ago, our family life was turned upside down. We had spent over 3 months in a hospital and quickly had to adjust our direction in life. Whilst #EmersonGrant2014 was a patient at Stoke Mandaville spinal unit every day we walked the corridors to get Emerson used to his new life in a wheelchair.

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Emerson always went up this art work of @davidweir2012 and wanted to race, from that moment we realised our life was not over – we just had a new life to embrace.

This picture gave us hope and made us realise that we will not allow Emerson’s disability to define or restrict him.

He can still do all the things he desires, he just needs to find a new way …thank you #davidweir for providing us with hope and certainty in tragic circumstances 💪

#wheechairlife #anythingispossible #nevergiveup #believe #hope#spinalcordinjury #arachnoidcyst #cystonthespine #sci #findacure#weirarcher

 

Hydro-Therapy at Shriners Hospital

‪Lovely seeing #emersongrant2014 enjoying his hydro session whilst at Shriners Children’s hospital in Philadelphia back in the summer 2017. @shrinersphilly

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The smile says it all, the amazing work these guys do makes us feel confident and believe that anything is possible.

 

Shriners Hospital for children in Philadelphia provides specialised care to children with orthopaedic conditions and spinal cord injuries.

Did you know that when you shop at Amazon you can select this charity, so they receive a % donation #simplefundraising for such a good cause

 

 

Diaphragmatic breathing after spinal cord injury

Diaphragmatic breathing after spinal cord injury

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An interesting read – Emerson’s level of injury is C6/C7 – Feeling cautious about being around people incase he catches a cold that will turn very quickly into a life threatening complications such as pneumonia or bronchitis – I’m wishing the winter days away and lay awake at night preying he doesn’t end up in hospital over Christmas again 😠 right now this moment in time I’m not feeling positive I’m feeling lots of hatered for #spinalcordinjury and the complications it brings – when I eventually fall asleep tonight I will wake in the morning and be positive again because that is all we can do!

http://spinalinjury.info/diaphragmatic-breathing-spinal-cord-injury/

 

Fundraising event – Afternoon tea

Blooming Great Afternoon Tea event fundrasing for Emerson Grant.

23658563_523278214696782_4408647340461047393_nA few seats still available for this exciting Afternoon tea event at #powersweybridge in Weybridge, Surrey.

Enjoy a delightful fundraising afternoon with friends, treat yourself to a fancy tea with prosecco on arrival, followed by some delicious cakes, scones and sandwiches filled with delicious fillings

Powers restaurant Cafe on Oatlands Drive, Weybridge, Surrey have kindly donated their premises to hold a Blooming Great Afternoon fundrasing Tea event, hosted by Emerson’s fairy god-mothers to raise much needed funds for Emerson Grant.

SUNDAY 10TH DECEMBER 2017
2.30PM – 5.30PM
POWERS RESTAURANT CAFE, 140 Oatlands Drive, Weybridge, Surrey, KT13 9HJ

£20.00 per person includes a glass of prosecco

This is a ticket only event and all proceeds will be donated to Emerson Grant fundraising page.

https://www.justgiving.com/crowdfunding/emersongrant2014-the300challenge

Please R.S.V.P. by 1st December to
Anna-Marina at
amdearsley@gmail.com or
call 07949 50647

Physio-Therapy sessions bring on the laughter and smiles…

You know #emersongrant2014 is having a good time at his #physiotherapy session when he cracks that adorable smile and roars out laughing – thank you for all the donations receive so far, without your support he wouldn’t be able to attend private specialist Physio sessions

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If anyone is interested in joining The 300 challenge to help raise funds towards specialist Physio therapy sessions and a specialist FES bike that will keep Emerson’s body moving to prevent further medical complications please get in touch – We need 100 people over 100 days to raise £100 each 

Contact us for your fundraising poster and collection box, you can join in from any country in the word too!!

#grateful #physicaltherapy #spinalcordinjury
#birkdaleneuro

www.justgiving.com/crowdfu…/emersongrant2014-the300challenge

Belated update

Emerson Grant’s Story – The road to recovery at St Peter’s Hospital,

So what a week it’s been!!! From meeting #paralympians, #motorracing stars past, present and future to #emersongrant2014 being rushed to hospital to Emergency resuscitation!!! As most of you know we live in constant anxiety having a child with #spinalcordinjury #SCI, we are still learning and everyday we are presented with a new obstacle to overcome that we take on with a smile.

Sadly this week we dealt with something no parent ever wants to deal with.

At 04.10 on Tuesday morning Emerson woke and felt very clammy,sweaty, looked very pale and felt cold to touch. This is a way of Emerson’s body telling us something isn’t right. We quickly took his temperature which had a very low reading. Within minutes Emerson’s body went into shock and he had a of stroke/seizure. He stopped breathing and was unresponsive, his body was jerking and he was clutching his chest. His pupils were largely diluted but he was just staring with no movement. For over an hour we watched the ambulance emergency service work out what was wrong. They checked his blood sugar levels which were extremely low 1.8. The average persons levels should read between 2.5 and 7.5. We felt helpless and watched the ambulance men help him and treat whatever it was that put his body into shock.

We arrived at the A&E and the resuscitation team were waiting for us. We watched for over 5 hours as they worked tirelessly to get him stable and thankfully we sit here today with a few smiles back.

It is still unknown what caused Emerson to react like this, he had shown no illness prior and went to bed as normal after being fed, and with fluids. We have always maintained his bladder and bowel management and that was all ok.

Many tests have been completed and we await some results and continue to be in hospital for a few more tests.

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We count our blessing today that Emerson is sitting up and eating and becoming his usual self, our cheeky little warrior not really understanding the trauma his tiny little body has been through over the last 5 days.

We cannot even begin to explain the pain we felt seeing his body go into seizure, watching the paramedic cut his clothes off, sitting in resuscitation as they desperately try to get the cannula in his hand and as he’s wrapped in a snuggle bag to get his temperature up.

We explain this all in such detail for many reasons but mainly because we wonder if anyone else has suffered similar and can offer us and the doctors any advise on what it was that sent his body into a seizure and also we want to raise awareness make sure that this is documented so that others that might find themselves in a similar situation will know what to do or at least know that they are not alone and it’s happened to someone else.

We are not sure if this was related to #autonomicdysreflexia as we and the doctors can’t understand why his blood sugar levels went down so low.

We believe that a low blood sugar level has never been researched or documented with Autonomic Dysreflexia.

We thank all the emergency services for bring Emerson back and their continued support in trying to find an answer and we thank everyone of our Facebook friends and family for there continued support, love and prayers.

In this new life we find our selfs in, everyday is tough and a challenge but thankfully we are able to plough on positively as we embrace this new journey trying to make the best of everything we do and to never give up hope.

We are so fearful should this happen again Emerson may not survive or it will cause very serious brain issues.

We prayer that we can get to the bottom of this quickly so we can manage this in our everyday routines and prevent it from ever happening again.

Today is good – but tomorrow is unknown, but we will face the challenges.

#lifeafterspinalcordinjury #nevergiveup #spinalcordinjuryhope #spinalcordawareness #spinalcordresearch